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EPILEPSYTV
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Epilepsy Action Australia
Messages from young people living with epilepsy
Facebook: epilepsyactionaustralia
Instagram: epilepsyactionaustralia
LinkedIn: www.linkedin.com/company/90569
Twitter: Action4Epilepsy
Instagram: epilepsyactionaustralia
LinkedIn: www.linkedin.com/company/90569
Twitter: Action4Epilepsy
Переглядів: 94
Відео
Ask an Expert - Surgery for Epilepsy. Erica Jacobson Neurosurgeon
Переглядів 1148 місяців тому
Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
Ask An Expert - Epilepsy and Depression
Переглядів 38510 місяців тому
Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
Ask An Expert - Women With Epilepsy
Переглядів 19010 місяців тому
Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
FLOW FM Radio Interview with Carol Ireland and Clayton Bester
Переглядів 24Рік тому
Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
Ask an Expert. Part 2. Epilepsy and Childhood Development. Dr Kate Riney.
Переглядів 79Рік тому
Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
Ask an Expert - Part 1. Epilepsy and Childhood Development. Dr Kate Riney.
Переглядів 157Рік тому
Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
2GB Healthy Living with Carol Ireland
Переглядів 75Рік тому
Listen to Carol Ireland's radio interview with 2GB radio station as she discusses the challenges faced by people living with epilepsy and how we can support them. Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
Advice for people who just had their first seizure | Living with epilepsy
Переглядів 138Рік тому
Join our free youth Facebook group: groups/eaayouthgroup/ Learn more about epilepsy here: www.epilepsy.org.au/about-epilepsy/ Vodcast Project made possible with funding from the NSW Government Youth Opportunities Grant Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4...
How to help people with epilepsy | Young Australian Q&A
Переглядів 120Рік тому
Emma is a young person living with epilepsy in Australia. If you have any more questions please leave them below and we will be sure to ask our community on Instagram! Youth Facebook Group: groups/eaayouthgroup/ Vodcast Project made possible with funding from the NSW Government Youth Opportunities Grant Facebook: epilepsyactionaustralia Instagram: epileps...
What to do when your disability stops you from working | Epilepsy Life | Youth Vodcast Project
Переглядів 79Рік тому
Has epilepsy stopped you from working? Have you had difficulties with employment? Share your experiences below to help other young people 💜 Youth Facebook Group: groups/eaayouthgroup/ Epilepsy & Employment: www.epilepsy.org.au/about-epilepsy/living-with-epilepsy/lifestyle-issues/employment/ Thank you to Anna and Sasha for their thoughts on how to find meaning outside of work, both ...
People with epilepsy share what they need after a seizure
Переглядів 107Рік тому
What do you need after you've had one? Youth Facebook Group: groups/eaayouthgroup/ Vodcast Project made possible with funding from the NSW Government Youth Opportunities Grant Facebook: epilepsyactionaustralia Instagram: epilepsyactionaustralia LinkedIn: www.linkedin.com/company/90569 Twitter: Action4Epilepsy
Dating and relationships with epilepsy | Youth Vodcast Project
Переглядів 1,7 тис.Рік тому
Emma and her boyfriend Luke discuss navigating epilepsy in their relationship, including when she told him and worries he may have. Youth Facebook Group: groups/eaayouthgroup/ Epilepsy & Family Planning: www.epilepsy.org.au/wp-content/uploads/2022/05/Fact-Sheet-Epilepsy-and-Pregnancy.pdf Vodcast Project made possible with funding from the NSW Government Youth Opportunities Grant Fa...
Mental health and epilepsy as a teenager in Australia
Переглядів 127Рік тому
If you need support please call Lifeline on 13 11 14 Youth Facebook Group: groups/eaayouthgroup/ Epilepsy & Mental Health: www.epilepsy.org.au/wp-content/uploads/2022/05/Fact-Sheet-Depression-Anxiety-Epilepsy.pdf Thank you to Lily for opening up about her experiences 💜 Vodcast Project made possible with funding from the NSW Government Youth Opportunities Grant Facebook: facebook.co...
Travelling with epilepsy (international and domestic) | Youth Vodcast Project
Переглядів 248Рік тому
Travelling with epilepsy (international and domestic) | Youth Vodcast Project
Having A Career With Epilepsy | Disability Awareness | Youth Vodcast Project
Переглядів 215Рік тому
Having A Career With Epilepsy | Disability Awareness | Youth Vodcast Project
Regional towns & epilepsy | Living with a disability in country Australia
Переглядів 272Рік тому
Regional towns & epilepsy | Living with a disability in country Australia
Living life to the fullest with epilepsy | Youth Vodcast Project
Переглядів 222Рік тому
Living life to the fullest with epilepsy | Youth Vodcast Project
So, You Were Just Diagnosed With Epilepsy
Переглядів 119Рік тому
So, You Were Just Diagnosed With Epilepsy
Dr Maria Kangas 'Telling your new partner you have epilepsy.
Переглядів 129Рік тому
Dr Maria Kangas 'Telling your new partner you have epilepsy.
Ask An Expert - Treatments for medication resistant epilepsy. Professor Terry O'Brien
Переглядів 1472 роки тому
Ask An Expert - Treatments for medication resistant epilepsy. Professor Terry O'Brien
Ask An Expert - Neurosurgery - Erica Jacobson
Переглядів 5022 роки тому
Ask An Expert - Neurosurgery - Erica Jacobson
Drug-resistant epilepsy with Professor Patrick Kwan
Переглядів 1,2 тис.3 роки тому
Drug-resistant epilepsy with Professor Patrick Kwan
He will one time give a testimony like me
This is good information
The drugs for epilepsy side effects are awful 😢 ua-cam.com/video/w-dxMTDzMLY/v-deo.htmlsi=HdJ0_OcS3lOZANOs
Dear Dr thank you, at least you start to understand
🙏 baby doll and upte
Im from uk didn't knows of sudep i thouģht it was rare how wrong i was my poor Conner f17 june 26th 23
I put a book between her teeth to not make her bite her tongue But I’m scared I might be blocking her air way Should I not put anything to prevent tongue biting for the seizure having person ? Or just do as told here and not put anything in their mouth
It is not necessary to put anything in the persons mouth. It can cause injury to either the person with epilepsy or yourself. It really isn't possible to stop the tongue biting unfortunately.
Very informative and educating video.....
what should i do if my bf left me cz of epilipsy after being together 7 years.
Marriage is the important matter in onces life . If a person who was diagnosed with seizures. Have consequences to acquire/ suffer much to such life situations. I my wife enjoying the summer vacation.. as an interval from academics & students ... We are preparing for our second child We have son . Once my wife comes back earlier & shifted our son to his maternal home 🏘️ . Because to avoid seeing of sexual intercourse of parents. In night we both are decided to have a sexual intercourse. When the night . I undressed her & Lyied her on 🛏️ have a foreplay by touching her on Breast and brown Nipples. Then she smiles at me . Then she halfway sit on 🛏️ then touches her breasts and brown Nipples onces again & Navel . Then she said she feels headache hallucinations & Giddiness all. I think that she says like that because she have shyness that I have touched her Breasts Nipples. Again while doing cowboy intercourse I touches & smooths on her Breasts same moment while smiling her eyes Rolls crossed and then gets upwards 🙄😵 . Her head , Breasts , 👣 were shaking slowly... & Uncontrollable Shivering After few seconds she was Form & forth . . Seeing the form I hold her childed hands & rubbed . Then I insert a key 🗝️ in her hands & then I done 1st aid to her after 3 seconds her shivering stops then without wasting time I just wrapped her in blanket and takes her to hospital there she admitted in ICU & given drip after few seconds she regains. Then I Touched her breasts brown Nipples. Then she realised that she was taken hospital b/ w sexual intercourse. She only knows her eye's rolls upwards when I touched on her breasts. Then Dr takes MRI & EEG of my wife in that nothing problem. Then they check her pressure, sodium level blood count etc . These are very low & becomes down that effect her . This made the occurrence of fits . Dr said there is chance of fits to her again so she will be observed for 2 days . But there is no occurance of fits . She was discharged from hospital. As our elder son's wish we decided to give him a sibling for that again we done a sexual intercourse . There is no burden of seizures Fits. Onces she was 🧹 the front cortyard of our home she felt severe Giddiness & collapses Unconscious. When regains she said that she is convinced
Marriage is the important matter in onces life . If a person who was diagnosed with seizures. Have consequences to acquire/ suffer much to such life situations. I my wife enjoying the summer vacation.. as an interval from academics & students ... We are preparing for our second child We have son . Once my wife comes back earlier & shifted our son to his maternal home 🏘️ . Because to avoid seeing of sexual intercourse of parents. In night we both are decided to have a sexual intercourse. When the night . I undressed her & Lyied her on 🛏️ have a foreplay by touching her on Breast and brown Nipples. Then she smiles at me . Then she halfway sit on 🛏️ then touches her breasts and brown Nipples onces again & Navel . Then she said she feels headache hallucinations & Giddiness all. I think that she says like that because she have shyness that I have touched her Breasts Nipples. Again while doing cowboy intercourse I touches & smooths on her Breasts same moment while smiling her eyes Rolls crossed and then gets upwards 🙄😵 . Her head , Breasts , 👣 were shaking slowly... & Uncontrollable Shivering After few seconds she was Form & forth . . Seeing the form I hold her childed hands & rubbed . Then I insert a key 🗝️ in her hands & then I done 1st aid to her after 3 seconds her shivering stops then without wasting time I just wrapped her in blanket and takes her to hospital there she admitted in ICU & given drip after few seconds she regains. Then I Touched her breasts brown Nipples. Then she realised that she was taken hospital b/ w sexual intercourse. She only knows her eye's rolls upwards when I touched on her breasts. Then Dr takes MRI & EEG of my wife in that nothing problem. Then they check her pressure, sodium level blood count etc . These are very low & becomes down that effect her . This made the occurrence of fits . Dr said there is chance of fits to her again so she will be observed for 2 days . But there is no occurance of fits . She was discharged from hospital. As our elder son's wish we decided to give him a sibling for that again we done a sexual intercourse . There is no burden of seizures Fits. Onces she was 🧹 the front cortyard of our home she felt severe Giddiness & collapses Unconscious. When regains she said that she is convinced
I have had 2 status episodes the first one in Oct. 2022 and getting the VNS after that. Everything has been well and even improved until several weeks ago and had my 2nd instance of status. Both times my father found me during my tonic Clonic seizure and the noises that I was making. Both instances my skin changed colors and lips turned blue. Spent a night in hospital both times. Ativan not effective each time. RNS implant may be implanted this year.
This space looks empty huh🤔 Nice vid anyway
😁
When I was 2 months pregnant, I was not taking enough medication, and I had stress. I started to have my seizures nonestop, so they put me into an induced coma till they found the right medication that took 4 days. I love my husband, and we are happy because she was born as healthy and beautiful as she could be now she is in school. ❤
Thank you for making this my wife has epilepsy. ❤
My good friend passed on 1/18/24. He was like a son to me. He was 21 years old and a sweet kid in the neighborhood. He did everything that he was supposed to do but the seizures got worse and no the medications stopped working. His death prompted me to research my diagnosis of complex focal seizure disorder.
Im very sorry to hear about your friend. Taken way too early. 😞
The boy would have been 18 by now
Where How to go to find boyfriends girlfriends men & women like yourself to date ?
Any Dating tips for medically resistant epileptic’s e.g app people & places to go date
Por favor, coloca legenda em português também?
I had a Craniotomy to correct my life time illness from epilepsy. The Neurosurgeon remove part of my left lobe over 5 years ago. I now suffer from fibromyalgia, nervous system is messed up and still have seizures plus I am in chronic pain 24/7 and unable to take pain meds due to damage to my liver and kidney's from taking seizure meds all my life. Now I wished I never had the most painful scary surgery. I also have short term memory loss and improper balance and many other issues. I could kick myself for agreeing to have this surgery especially when my first Neurologist said it would not work and could cause more damage. He was right and I should have listened to him. Thank you for sharing this video. My children always fear that something like this could happen and I only have seizures in my sleep and if I am awake I am not aware of them anyway. Only if someone sees me have one.
Thank you for your comment. Im so sorry you have been through such an experience.
Good one thanks for sharing l 👍🙏
Erica Jacobson is an awesome neurosurgeon . I went through a lot of test before she operated on my right side temple lode. My seizures are more under control now. I thank you for the surgery
I am on 5 meds and still have auras and absences daily
I'm on 3 seizure medications, and still having seizures.
Im sorry to hear that Heather. If youre not seeing an epilepsy specialist, then it may be worth getting a referral to one.
dnt call 000
That’s wonderful news. I definitely subscribed to you both 😊
Great information. I wish I had found this channel sooner.
What a crock of sh1t I have great night sleep but still suffers from seizures, obviously this does not apply... Would like more in you can help me.........
I was a heavy drinker, now my first day I'm down to one beer. My last seizure was in 2013 I take my meds and I haven't had seizure in a decade. It just puts me to sleep.
I will always love you Abdulahi. I will always miss you
❤❤ this is amazing to hear than I am not alone. I have absence seizures as well
I was diagnosed with Epilepsy when I was 2 and had a Tumor surgically removed when I was 8. 23 years Seizure free.
This is very helpful. Thank you 🙏
You’re welcome 😊
I have seizure for 19 years I want to help people with seizure how can I help.
Thank you. You are more than welcome to contact us on 1300 37 45 37 if you would like to volunteer.
NEVER Touch someone who cannot respond, especially a woman. They can charge you with sexual assault and depending on the state, you might end up in the slammer. Its best to call an ambulance and dip
Thanks for your feedback. In Australia, Good Samaritan laws offer legal protection to people who give reasonable emergency assistance to those who are injured, ill or in danger. These laws are intended to reduce bystanders' hesitation to assist those in need, by providing protection to those who act in good faith.
@@EPILEPSYTV i live in south korea
I can say bad stress, depression brings triggers panick attacks, anxiety or seizures. Hard to tell...
Beautiful lady.i also uave tonic clonic seizures
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I had Epilepsy when I was younger, but we think it’s on it’s way back because I’m having Absence Seizure and petite mal ‘s and 2 week go I had one of the petite mal at My day program I do on Friday to to the point where my eyes rolled back my head
I got my first seizure 2 months ago, at morning 5am, I was awake the entire night playing video games..... I have been taking my sleep seriously since then
i have epilepsy it uncomfortable
One of my teachers suffers epilepsy too
Came here after south african singer died on stage performing..
DrDan this is no Mc laughing manner.
When someone is having a seizure just put some salt in their mouth and it will stop instantly
Hi Dwayne, thanks for your feedback but this will not stop an epileptic seizure unfortunately.
I’ve got 2 hours in the last 5 days. I’ve been having a lot of focal aware seizures and lots of myoclonic seizures but so far haven’t had a tonic clonic yet. What can I do besides meditation or melatonin which literally has no effect?
Hey my name is Bethany I have a seizure a pee 😴on van
Hello everyone, I'm an epileptic from India who has been living with this issue for 25 years now. Is there anyway i can connect with you ?
How much sleep is required
Shaeique, Dr McLaughlin has said to me could stay up to 10pm provided you have a nap in the arvo. I have taken his advice about sleep seriously.
@@judithhall9643 atleast how much duration of sleep is required
@@SM65067 check NCBI or some authentic articles